In South Africa every year on 17th April, World Hemophilia Day is observed. This is a worldwide critical effort event to increase awareness of haemophilia and other inherited bleeding disorders. The ultimate goal is to ensure better diagnosis and access to care and support for the millions who have a rare bleeding disorder yet remain without treatment.
This year’s theme, ‘Sharing Knowledge Makes Us Stronger,’ brings attention to the millions of men and women with Hemophilia or von Willebrand disease who live with a bleeding disorder or have someone in their lives who does.
World Hemophilia Day provides an opportunity to talk to your extended family and friends, colleagues, and caregivers to raise awareness and increase support for those living with an inherited bleeding disorder.
This year we have two hash tag awareness events to highlight people with bleeding disorders. The first is to encourage people to paint one fingernail red for the full week from the 16th to the 22nd of April in support of women with bleeding disorders and to post a selfie on their favorite social media platform using #CAUGHTREDHANDED
The second hash tag awareness event is to highlight people with general bleeding disorders. People are encouraged to wear a red tie, bowtie or scarf for the full week from the 16th to the 22nd of April to support all people with bleeding disorders and to post a selfie on their favorite social media platform using #REDTIECHALLEGE
These are worldwide efforts to improve the diagnosis and standards of treatment for those who need it. “We are all working together in the fight to raise awareness and improve care.” said Alain Weill, World Federation of Hemophilia President. “We all work together, support one another, and help out when someone needs it. That is what family does for one another.” says Mr. Bradley Rayner, Chairman of the SA Hemophilia Foundation.
For World Hemophilia Day 2018 The SA Haemophilia Foundation will be organizing various events at their local Haemophilia Treatment Centers and conducting interviews on radio and other media.
Watch this space for regular updates in the Events category on Running Wolf’s Rant.